Friday we got our monthly shot, which we always look forward to. Judy's symptoms usually get worse toward the end of the month. We are so thankful for the Sandostaten shot. It is the reason the tumor growth has been kept to a minimum. However, there has been an increase in the frequency of some flushing and abdominal pain since our last doctor visit two months ago. Dr. McCollum thinks it is time to add another med to our treatment. He feels certain the increase is coming from the cluster of cancerous lymph nodes attached to the small intestine.
We previously had told you about a new drug not yet approved by Medicare, except in a trial study. We opted out of the trial, since we would have to stop the monthly Sandostaten shot, and that could cause some severe symptoms. We are not going to do anything that will slow down the "Energize Bunny". But, some of Dr. McCollum's patients have been able to obtain approval for use of the new drug from Medicare outside the trial. He wants us to consider adding the drug, Afinitor and taking the prescription to Baylor's pharmacy and seeing if Medicare will let it go through.
Your assignment, if you should to accept, will be to pray that Medicare will approve payment for Afinitor. Otherwise, we will have to ask 30 of you to donate $100. per month to help pay for the monthly cost! Just kidding. But seriously now: we do covet your prayers for this new treatment's approval from Medicare. We believe that this is where we need to go from here. Also, please pray that Judy will get the proper nutrition to help her gain some weight (who ever heard of a woman asking for weight gain??).
We know without doubt, that we are not on this journey for any other reason but to glorify God by following Him without question. It's taken a while to get there, but we have this wonderful assurance that by allowing God to stay in charge, the life He gives us here on earth pales in comparison to what he has promised "to those who are called according to His purposes"
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We love everyone of you,
Judy and Ronnie
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I just found your blog and I read through a lot of it. I already knew some things, but I learned a lot of details, and I'm sure it will help me pray for you much more. You both have a wonderful testimony and you've been such blessing in my parents' lives, but you've also been a blessing to me. I will especially pray now about the Medicare.
ReplyDeleteLove in Christ,
Greg Graham
So sweet to hear from you. We see your Dad a lot. Your Mother would
ReplyDeletebe so proud of him.
We believe that the prayers of Godly people have given us strength we never knew we had. We also believe that God hears the prayers of those who may be just beginning to learn how good it makes you feel to go to God for a friend.
Thank you for putting us on your prayer list. We know you will truly pray.
Judy
We will continue to pray for our sweet, precious friends! We love you so much! Robin just finished up teaching a women's bible study and she mentioned her sweet Judy often as a living example of a heart for Jesus! What an amazing testimony of staying the course...God is smiling!
ReplyDeleteLove,
Steve and Robin
Is that you Steve? Sounds like Robin! We sure do love you guys and wish we could be with you.
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